Lupus Walk 2014

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On Saturday Shawn and I went on our 2nd lupus walk in Indianapolis, Indiana. It was Emma's first time. We had fun, got to see a fellow lupie friend and her family. We were supposed to walk 1 mile but I tracked it on my mapmywalk app and it turned out to be closer to 2 miles. We brought Emma's stroller, but she ended up walking most of it (stubborn girl). 

Other than being Emma's first walk it was  also the first time she heard the national anthem. 

And first time a clown had made a balloon animal just for her. 

Her balloon poodle fell on the grass and the front legs popped. She was upset for about 4 minutes and I stuffed the balloon dog into my new Walk to End Lupus bag. Out of sight out of mind. 

After the walk my friend's daughter and her friend performed two songs and they were amazing. <3

They do a balloon release every year and it's supposed to be for those we've lost to this horrible illness, but this year they announced it was for anyone suffering with the illness and as they released the balloons into the sky a woman sang the song "I will survive". The meaning for the balloons was lost and the song choice was very inappropriate. I and a bunch of others were very ticked off about this. They took a beautiful way to remember those we've lost and ruined it. 

Before we left a couple actually got married at the event. They had a ton of people attending with them & they all wore matching shirts. It was sweet and even a news channel was there to record it. I did feel sorry for them though because the sound system sucked and they kept getting feed back during the entire little ceremony. 

As soon as we got to the car my skin started to hurt. I had to wipe off my little butterfly I had face painted & my make up because my face was stinging. I had to take my necklace off because hives were forming around the bad of my neck. I thankfully had my crime medicine in my purse and applied it. I fell asleep for the two hour car ride home. I felt a little better after my nap, but later in the evening I had to take some meds because I felt shaky. I ended up having a seizure anyway. 

Sunday I stayed home alone. My husband went larping (live action role playing) for the first time and he dropped Emma off with my cousin while he did that so I could rest. I turned on Netflix to try and catch up on an anime I'm currently watching, but I was so weak I couldn't concentrate on the subtitles. I went and laid back down and pretty much slept until 4pm when my husband called to tell me he and Emma were almost home. 

I'm hoping tomorrow is a better day and hope my body isn't trying to go into a full on flare. Ain't nobody got time for that.